Transcripts for CNN This Is Life With Lisa Ling 20240604 06:

CNN This Is Life With Lisa Ling June 4, 2024 06:26:00

i'm just over doing things just kept getting tired around here, and i couldn't figure out why you got sick and then i got sick. i started having fevers constantly, and i started having seizures, and a lot of seizures got to the point to where i was having 567 you know, 10 seizures a day. after several hospitalizations, alison was finally given multiple diagnoses. they're like, yeah, it's lupus. and then he said, you have a rare genetic mutation called earlier standoff syndrome. due to the complexity of these overlapping conditions , there are no effective treatment options available. how often do you think about the fact that you're sick? there are days where i get up, and i'm like, i don't have a lot of energy today. maybe i'm just gonna wear pajamas because i'm tired, and i'm probably gonna sleep half the day. it's a situation she might find unbearable without her boyfriend, john. here's your coffee. oh, thank you. for the past two years, he has been her rock. but john wasn't the only

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