All you need to know about Batten Disease, which killed Oscar Jealous aged 10 birminghammail.co.uk - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from birminghammail.co.uk Daily Mail and Mail on Sunday newspapers.
Organisers of a sponsored walk to support a local girl and her family were blown away at the weekend as 270 people completed the 10-mile hike between the football pitches at Lauder and Melrose.
Single mum with severely disabled daughter 'losing sleep' after seeing energy bills treble manchestereveningnews.co.uk - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from manchestereveningnews.co.uk Daily Mail and Mail on Sunday newspapers.
Batten disease refers to a group of inherited genetic disorders that affect the nervous system. Learn more about the symptoms and treatment options here.
But molly and her mum, adele, are going through the toughest of times. shall we put some songs on? three years ago, molly was an active 10 year old. let s wipe that chin. but then she was diagnosed with a rare, life limiting condition called batten disease, which has taken her mobility and her vision. she s always full of beans, giggling. funny. just lets nothing get in her way whatsoever. she s amazing. ready in the swing? there s no escaping the amount of specialist equipment molly uses each day. 0k, mummy sjust going to move that chair now. adele is a single mum, so she can t do without it, but it all needs power. 0oh. i ll push you that way a bit, molly. we ve got two wheelchairs, two ceiling track hoists, a through floor lift, two suction machines and an electric bed. if this isn t on charge,