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Refused treatment: Kiwi teen accused of faking bowel illness

An 18-year-old girl diagnosed with likely Ehlers-Danlos Syndrome (EDS) has been refused treatment in New Zealand as doctors claim she is faking her symptom ....

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Steph Aston sought help for a rare genetic disorder. She died after being accused of faking her illness

EHLERS-DANLOS SYNDROME: After being misdiagnosed and committed to a psychiatric ward, Steph became a tireless advocate for Ehlers-Danlos Syndrome patients before her death at the age of 33, Bevan Hurley writes ....

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Steph Aston sought help for a rare genetic disorder. She died after being accused of faking her illness

EHLERS-DANLOS SYNDROME: After being misdiagnosed and committed to a psychiatric ward, Steph became a tireless advocate for Ehlers-Danlos Syndrome patients before her death at the age of 33, Bevan Hurley writes ....

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33-year-old woman dies from rare disorder. Doctors had told her it was 'all in her head'

Ehlers-Danlos Syndrome, with its 13 distinct variants, attacks the body s connective tissue, earning it the moniker of an invisible disease. ....

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Woman 33 Year Old Dies From Rare Disorder; Here's Why

Woman 33 Year Old Dies From Rare Disorder; Here's Why
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