New group to develop national rare disease plan
Target date of autumn 2024 set for new proposals
Source: imt.ie
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Opinion: We need to match talk of 'patient revolution' with Chief Patient Officer role
Patients have been kept on the outside of their healthcare experience; they should be promoted to educators and decision-makers.
Source: thejournal.ie
Open Newsroom Invitation: Healthcare - the power of patient advocacy
Join us at 1pm this Thursday.
Source: thejournal.ie
Citizens' jury needed to deliver verdict on use of genomics in State
Group of 25 people sought to consider how should genetics be applied and regulated
Source: irishtimes.com
Public asked to be part of a 'Citizens' Jury' on how personal health records are used
A nationwide campaign has been launched to find 25 members of the public, broadly representative of the Irish population, who are willing to be part of a “Citizens’ Jury” on what should happen to a person’s health information. It comes in advance of the creation of a national electronic health record which would have a summary of each individual’s medical information allowing doctors to access it regardless of what health setting the patient is attending instead of the current system where details are not automatically shared. The new campaign from Irish Platform for Patients’ Org...
Source: independent.ie