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The mental toll of living with a rare disease

Angelina is a fierce eight-year-old. But beneath her radiant smile and infectious laughter lurks a young girl fighting a daily battle. Angelina struggles to walk, talk, eat, and control her emotions. She can't sleep because her brain won't let her rest. ....

City Of , United Kingdom , United States , Louise Healy , Amy Hunter , Giovi Moschoudis , Research At Genetic Alliance United Kingdom , Genetic Alliance United Kingdom , Angelina Cask Neurological Research Foundation , Rare Voices , Torres Strait Islander , Syndromes Without ,

RARE Global Advocacy Alliance Member Spotlight: Giovi Moschoudis

RARE Global Advocacy Alliance Member Spotlight: Giovi Moschoudis
globalgenes.org - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from globalgenes.org Daily Mail and Mail on Sunday newspapers.

United States , Giovi Moschoudis , Global Advocacy Alliance , Angelina Cask Neurological Research Foundation , Organization Mission , Gene Mutation , Cognitive Science , California United States , Global Advocacy , Global Genes , Member Spotlight ,

RARE Global Advocacy Alliance Member Spotlight: Giovi Moschoudis

RARE Global Advocacy Alliance Member Spotlight: Giovi Moschoudis
globalgenes.org - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from globalgenes.org Daily Mail and Mail on Sunday newspapers.

United States , Giovi Moschoudis , Global Advocacy Alliance , Angelina Cask Neurological Research Foundation , Organization Mission , Gene Mutation , Cognitive Science , California United States , Global Advocacy , Global Genes , Member Spotlight ,

RARE Global Advocacy Alliance Member Spotlight: Giovi Moschoudis

RARE Global Advocacy Alliance Member Spotlight: Giovi Moschoudis
globalgenes.org - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from globalgenes.org Daily Mail and Mail on Sunday newspapers.

Giovi Moschoudis , Angelina Cask Neurological Research Foundation , Organization Mission , Gene Mutation , Cognitive Science ,

Queensland girl allergic to most foods

An aspiring Sunshine Coast photographer with a deadly allergy to almost all foods. A Sydney girl missing the middle area of her brain. A Melbourne teenager that s defied the odds to become one of the oldest in the world to live with a genetic mutation that leaves you unable to walk, talk or eat without a tube. And a 22-month Adelaide boy whose life was cut short by a brutal disease.
These are the stories of brave young Australians with some of the rarest diseases in the world. Their families hope to raise awareness and lure funding into research and development in the lead up to Rare Disease Day, Sunday. ....

New South Wales , South Australia , Sunshine Coast , Nicole Millis , Pak Poy , Sebby Coupar , Anna Pak Poy , Marc Coupar , Angelina Moschoudis , Bella Gray , Giovi Moschoudis , Sarah Gray , National Disability Insurance Agency , Rare Find Foundation , National Strategic Action Plan For Rare Diseases , Neurological Research Foundation , National Disability Insurance Scheme , Rare Disease Day , Corpus Callosum , Research Foundation , Mrs Moschoudis , Will Pierce , Kris Pierce , Australian Highland , Breast Cancer Awareness Day , National Strategic Action Plan ,