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Angelina is a fierce eight-year-old. But beneath her radiant smile and infectious laughter lurks a young girl fighting a daily battle. Angelina struggles to walk, talk, eat, and control her emotions. She can't sleep because her brain won't let her rest.
Kayce Jackson has SWAN (Syndromes Without a Name), and left the Crown and Cushion pub in tears earlier this month.
Australian researchers have been combing through 3 billion letters of genetic code to find single spelling mistakes that are causing mystery conditions.
Debbie Schwartz, 47, from Cardiff, spent her childhood visiting doctors. She is now one of the first patients at Britain's first commissioned clinic for people suffering with syndromes without a name
Melbourne mum shares her heartbreaking quest to find a diagnosis for her son