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Transcripts For CSPAN3 House Appropriations Hearing On NIH Research 20240713

The subcommittee will come to order. Thank you all very, very much and, again, we apologize for being late. Days take on a life of their own. But i wanted to say good morning, dr. Collins. Welcome back to labor hhs, the appropriations subcommittee. Let me just say thank you on behalf of the of the subcommittee for hosting members of the subcommittee for the site visit at the nih campus last week. We had a wonderful opportunity to learn more about nihs work. We met with the researchers who were working to cure Sickle Cell Disease, to develop treatments for major depression, shrink and treat cancer tumors in children. We heard from participants whose lives have been changed by Clinical Trials. So it was a moving an informative but a very moving experience as well. Let me welcome our witnesses, including the five institute and
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Parent Project Muscular Dystrophy Submits RUSP Nomination Package for Duchenne Muscular Dystrophy

Parent Project Muscular Dystrophy Submits RUSP Nomination Package for Duchenne Muscular Dystrophy
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Parent Project Muscular Dystrophy's ground-breaking effort

WASHINGTON, DC – October 6, 2021 – Parent Project Muscular Dystrophy (PPMD), a nonprofit organization leading the fight to end Duchenne muscular ....

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Parent Project Muscular Dystrophy's Ground-Breaking Effort: Completion of a Successful Pilot in Newborn Screening for Duchenne Muscular Dystrophy

Press release content from PR Newswire. The AP news staff was not involved in its creation. ....

New York , United States , Duchenne Becker , Niki Armstrong , American Academy Of Pediatrics , Hunter Kelly Newborn Screening Research Program , Advisory Committee On Heritable Disorders For Newborns , Everylife Foundation For Rare Diseases , Pfizer Inc , York State Department Of Health , Genetic Alliance Expecting Health , Centers For Disease , Human Development , Northwell Health , National Institutes Of Health , Steering Committee , National Duchenne Newborn Screening Initiative , Newborn Screening Program , Newborn Screening Translational Research Network , American College Of Medical Genetics , Project Muscular Dystrophy , Newborn Screening Pilot , New York State , Screening Pilot , Founding President , Pat Furlong ,

7,000 challenges: The basis and burden of rare diseases

7,000 challenges: The basis and burden of rare diseases
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