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Staten Island native literally fighting for Duchenne muscular dystrophy in a boxing ring Updated 6:06 PM; Today 4:05 PM Jim Raffone and his son, James Anthony, 11, who is battling Duchenne muscular dystrophy. (Courtesy JAR of Hope) Facebook Share STATEN ISLAND, N.Y. Former Staten Islander Jim Raffone, Founder/CEO of JAR Of Hope, has been fighting for years to save children with a fatal disease called Duchenne muscular dystrophy. But on June 12, he’ll be fighting to save them in a totally different way – in a boxing ring. At the age of 50. Duchenne is an extremely rare (one in every 3,500 live births), muscle-wasting disease for which there’s no cure. By the early-teens, these kids (mostly boys) are in wheelchairs. By the late-teens, they’re breathing on ventilators. Average life expectancy is mid-20s for people with Duchenne.
Jim Raffone, the founder/CEO of JAR of Hope, has been fighting for years to save children with a fatal disease called Duchenne Muscular Dystrophy. But on June 12, he will be fighting to save them in a totally different way – in a boxing ring. At the age of 50. Duchenne is an extremely rare (one in every 3,500 live births), muscle-wasting disease for which there is no cure, according to a press release. Jim and Karen Raffone’s son, James Anthony, now 11, was diagnosed with Duchenne at 4. When they found out there was no cure, they started JAR of Hope to raise funds for research.