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Celebrating Rare Disease Day and 40 Years of the Orphan Drug Act Advocating for Rare Disease Patients and Their Families

Herndon, VA (PRWEB) February 07, 2023 -- Global life expectancy has more than doubled over the last two centuries, from less than 30 years to more than 72

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Families in India Face Ongoing Challenges When Coping With Rare Diseases

HERNDON, VA. (PRWEB) October 17, 2022 -- In India, an estimated 70 million people are living with a rare disease.(1) According to a recent report from RARE-X,

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Political Squabbles Slow Drug Development for Rare Diseases

Herndon, VA (PRWEB) September 07, 2022 -- The U.S. Food and Drug Administration, the key regulatory agency governing clinical trials in the US, has been slow

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Management of Pediatric Clinical Trials Calls for Urgent Technological Innovation

Manassas, VA (PRWEB) February 14, 2022 -- Changes in legislation, increased interest in pediatric studies by the pharmaceutical industry, and a renewed

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