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"The experience of Australian aged care workers during a trial implemen" by Esther L. Davis, Judy Mullan et al.

End of life care is an essential part of the role of Australian aged care homes (ACHs). However, there is no national framework to support aged care staff in systematically identifying residents with palliative care needs or to routinely assess, respond to, and measure end of life needs. The Palliative Care Outcomes Collaboration (PCOC) is a national outcomes and benchmarking programme which aims to systematically improve palliative care for people who are approaching the end of life, and for their families and carers. The PCOC Wicking Model for Residential Aged Care was developed and piloted in four Australian ACHs. This paper reports on the qualitative findings from semi-structured interviews and focus groups conducted with ACH staff (N = 37) to examine feasibility. Thematic analysis identified three overarching themes about the pilot: (i) processes to successfully prepare and support ACHs; (ii) appropriateness of PCOC tools for the ACH setting; and (iii) realised and potential benefits of the model for ACHs. The lessons presented valuable insights to refine the PCOC Wicking Model and enrich understanding of the potential challenges and solutions for implementing similar programs within ACHs in future. The results suggest that key to successfully preparing ACHs for implementation of the PCOC Wicking Model is an authentic and well-paced collaborative approach with ACHs to ensure the resources, structures and systems are in place and appropriate for the setting. The PCOC Wicking Model for Residential Aged Care is a promising prototype to support ACHs in improving palliative and end of life care outcomes for residents and their carers.

Australia , Australian , Palliative-care-outcomes-collaboration , Residential-aged-care , Health-personnel , Ealth-services-for-the-aged , Ursing-homes , Utcome-assessment , Alliative-care , Ualitative-research ,

"Implementing PCOC: A guide for services" by Sabina Clapham, Fiorina Mastroianni et al.

The purpose of this guide is to assist services in the implementation of the Palliative Care Outcomes Collaboration (PCOC) program. Implementing the PCOC program is a three stage process requiring action in the following areas: leadership and governance, routine assessment, orientation and ongoing education, data management and quality improvement.

Palliative-care-outcomes-collaboration ,

"Characteristics of patients diagnosed with pancreatic cancer who acces" by Nadia N. Khan, Sue M. Evans et al.

Purpose: Despite the benefits of palliative care (PC) in pancreatic cancer, little is known about patients who access PC. This observational study examines the characteristics of patients with pancreatic cancer at their first episode of PC. Methods: First-time, specialist PC episodes captured through the Palliative Care Outcomes Collaboration (PCOC), in Victoria, Australia between 2014 and 2020, for pancreatic cancer, were identified. Multivariable logistic regression analyses examined the impact of patient- and service-level characteristics on symptom burden (measured through patient-reported outcome measures and clinician-rated scores) at first PC episode. Results: Of 2890 eligible episodes, 45% began when the patient was deteriorating and 32% ended in death. High fatigue and appetite-related distress were most common. Generally, increasing age, higher performance status and more recent year of diagnosis predicted lower symptom burden. No significant differences were noted between symptom burden of regional/remote versus major city dwellers; however, only 11% of episodes recorded the patient as a regional/remote resident. A greater proportion of first episodes for non-English-speaking patients began when the patient was unstable, deteriorating or terminal, ended in death and were more likely to be associated with high family/carer problems. Community PC setting predicted high symptom burden, with the exception of pain. Conclusion: A large proportion of first-time specialist PC episodes in pancreatic cancer begin at a deteriorating phase and end in death, suggesting late access to PC. Timely referrals to community-based specialist PC, access in regional/remote areas, as well as development of culturally diverse support systems require further investigation.

Australia , Palliative-care-outcomes-collaboration ,

Funding boost for palliative care - Australian Ageing Agenda

Funding of almost $70 million will be directed into palliative care, the government has announced.

Flinders-university , South-australia , Australia , Australian , Mark-butler , Patsy-yates , Camilla-rowland , Health-service , University-of-wollongong , National-palliative-care-coordination-program , National-palliative-care-week , Palliative-care-pharmacist-foundation-training-program

New national program to improve palliative care

New national program to improve palliative care
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Australia , Australian , David-currow , Barbara-daveson , National-palliative-care-coordination-framework-for-australia , National-palliative-care-coordination , University-of-wollongong , Palliative-care-outcomes-collaboration , Australian-government , National-palliative-care-coordination-framework , Professor-barbara-daveson , Chief-investigator

"Palliative care symptoms and problems in a culturally and linguistical" by Jessica Roydhouse, Alanna Connolly et al.

Objectives: Migrant Australians with cancer have higher unmet needs and poorer health-related quality of life. Less is known about their palliative care experience. We aimed to assess comparative symptom distress and problem severity for culturally and linguistically diverse Australians with cancer in palliative care. Methods: This was a retrospective, consecutive cohort study using data from the Palliative Care Outcomes Collaboration, which routinely collects standardised symptom assessments nationally at point-of-care. Adults with a cancer diagnosis who died 01/01/2016-31/12/2019 were included. The presence/absence of patient-reported symptom distress and clinician-rated problem severity were compared between people who preferred English and people who preferred another language using logistic regression models. We also compared people who preferred English and the four most common non-English languages in the dataset: Chinese, Greek, Italian and Slavic. Results: A total of 53 964 people with cancer died within the study period, allowing analysis of 104 064 assessments. People preferring non-English languages were less likely to report symptoms (pain: OR=0.89 (0.84 to 0.94); all other symptoms except fatigue OR<1 and CIs did not contain>1). Except for family/carer problems (OR=1.24 (1.12 to 1.31)), linguistically diverse people were less likely to report problems. Variation was seen between non-English language groups. Conclusions: We did not find evidence of comparatively worse symptom distress or problem severity for nearly all scores for culturally and linguistically diverse Australians. Better symptom management or differential reporting may explain this. It is important to examine this further, including assessing differences within cultural and linguistic groups to ensure the delivery of high-quality palliative care.

Australia , Greece , China , Italy , Australians , Italian , Chinese , Greek , Migrant-australians , Palliative-care-outcomes-collaboration , Cancer

Older Australians to benefit from new centre to improve end of life care

Older Australians to benefit from new centre to improve end of life care
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Australia , Australians , Australian , Patriciam-davidson , Claire-johnson , Palliative-aged-care-outcomes-program , University-of-wollongong , Royal-commission , Australian-health-services-research-institute , Federal-government , President-professor-patricia , Australian-government

Aged care palliative care program underway - Australian Ageing Agenda

The University of Wollongong’s Australian Health Services Research Institute received almost $9 million to establish the Palliative Aged Care Outcomes Program.

Monash , South-australia , Australia , Melbourne , Victoria , Australians , Australian , Vivian-bullwinkel , Claire-johnson , Palliative-aged-care-outcomes-program , Palliative-care-nursing-at-monash-university , Eastern-health

New centre to improve end of life care for older Australians

University of Wollongong awarded $8.9 million funding to establish Palliative Aged Care Outcomes Program The Australian Health Services Research

Monash , South-australia , Australia , Melbourne , Victoria , Australians , Australian , Kathy-eagar , Patriciam-davidson , Claire-johnson , Palliative-aged-care-outcomes-program , Palliative-care-nursing-at-monash-university

"Comparing functional decline and distress from symptoms in people with" by Matilda Barnes-Harris, Samuel Allingham et al.

Abstract
Background: Malignant and non-malignant respiratory diseases account for >4.6 million deaths annually worldwide. Despite similar symptom burdens, serious inequities in access to palliative care persists for people with non-malignant respiratory diseases. Aim: To compare functional decline and symptom distress in advanced malignant and non-malignant lung diseases using consecutive, routinely collected, point-of-care national data. Setting/participants: The Australian national Palliative Care Outcomes Collaboration collects functional status (Australia-modified Karnofsky Performance Status (AKPS)) and symptom distress (patient-reported 0-10 numerical rating scale) in inpatient and community settings. Five years of data used Joinpoint and weighted scatterplot smoothing. Results: In lung cancers (89 904 observations; 18 586 patients) and non-malignant end-stage respiratory diseases (14 827 observations; 4279 patients), age at death was significantly lower in people with lung cancer (73 years; IQR 65-81) than non-malignant end-stage respiratory diseases (81 years; IQR 73-87 years; p

Australia , Australian , Palliative-care-outcomes-collaboration , Australia-modified-karnofsky-performance-status , Copd-pathology , Ung-cancer , ஆஸ்திரேலியா , ஆஸ்திரேலிய , நோய்த்தடுப்பு-பராமரிப்பு-ஔட்கம்ஸ்-இணைந்து ,