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6 and novel extended half‐life clotting factors and nonfactor replacement therapeutics, 7,8 it is becoming increasingly important that PwH and their caregivers are sufficiently informed about how their present and future challenges can be adequately addressed with relevant solutions and strategies, to make better and informed treatment and health behavior choices. Therefore, this study aimed to collect data on the level of PwH and CPwH health education and health information-seeking behavior from six Central European countries, to identify perceived disease interference in everyday life, pa...

To print this article, all you need is to be registered or login on Mondaq.com. More and more in recent years, a single word has dominated news coverage of the United States Senate: filibuster. The word evokes images of non-stop talkathons and nothing getting done. Although so-called "speaking filibusters" are almost entirely a thing of the past, there's considerable support for the impression of gridlock. The 116th Congress was the least productive in 50 years; only 194 bills were passed by both houses and signed into law as of December 4, 2020. For most of the hist...

To embed, copy and paste the code into your website or blog: On December 6, 2020, we posted an article titled “RADICAL new transparency rules likely apply to your health plan in one year.” The regulations are a little more than 150 PDF pages long. The following is intended to provide a condensed, but more comprehensive, summary of the requirements described in our December 6, 2020 article. January 1, 2022 – Three files disclosed For plan years beginning on or after January 1, 2022 Applies to non-grandfathered health plans Public disclosure Out-of-network allowed amounts Negotiated rates...

Top leadership in Washington hardly valued clear, concise or correct communication over the last few years. Presidential musings routinely veered into indecipherability. “I call it the black hole,” said Annetta Cheek, a former bureaucrat in her mid-70s who helped launch the government’s plain language movement. But the deep state of Plain Language persevered. A loose network of jargon critics, crusaders for clarity and gatekeepers of grammar, they regularly invoke the little-known Plain Writing Act signed into law early in the Obama era. As they do, they nudge a government predisposed t...

Jargon critics, crusaders for clarity and gatekeepers of grammar nudge a government predisposed to over-complication and incomprehensibility toward making sense. They stubbornly drag the bureaucracy along, using methods that are generally subtle and gentle but occasionally blunt.