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The Lovatos relocated from Guatemala to Ohio for their son, who has the rare genetic disorder Canavan disease

At one point, Pedro and Augusto, born conjoined at the head, were on “the edge of organ failure," one of their doctors said

WBAL Radio 1090 AM - Doctors who separated conjoined twins in three-day surgery speak for first time

0 shares Benny Landsman, 4, at Dayton Children’s Hospital April 8, 2021, before surgery to receive the first clinical trial of a new gene therapy for Canavan disease. (Courtesy of the Landsman family/ via Dayton Jewish Observer) Benny Landsman, 4, is prepped for surgery at Dayton Children’s Hospital, April 8, 2021. (Courtesy of the Landsman family/ via Dayton Jewish Observer) Benny Landsman with Paola Leone and Dr. Christopher G. Janson at Dayton Children’s Hospital, April 8, 2021. (Courtesy of the Landsman family/ via Dayton Jewish Observer) Jordana Holovach with her late son, Ja...

By Marshall Weiss, The Dayton Jewish Observer (reprinted with permission) | May 06, 2021 In an operating room at Dayton Children’s Hospital on April 8, 4-year-old Benny Landsman of Brooklyn received the first new clinical trial of an FDA-approved gene therapy for Canavan disease. Neurosurgeon Dr. Robert Lober placed four catheters in holes drilled into Benny’s skull, down a track to a fluid space in the brain’s ventricles. Lober then manually injected a fluid containing 370 trillion viral genomes of the new therapy. By his side in the operating room were the trial’s cli...