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Meet the woman who has to live with a tube in her neck for life due to rare condition that left her unable to breathe

Alii Robinson, 31, of Basingstoke was born with a rare illness and has shown how she has to change a tube in her neck so she can breathe.  ....

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Man runs Boston Marathon for daughter, Boston Children's

Three years ago, Chad Goyette would never have dreamed about running the Boston Marathon. ....

United States , Robin Sequence , Chad Goyette , Boston Children 039 S , Boston Marathon ,

Montreal Children's Hospital doctors use bone-stretching technique to give baby a normal life


 
MONTREAL
A team of Montreal Children s Hospital doctors is using an old technique for bone stretching in a new way to give newborns with a severe birth defect a shot at a normal life.
When Ellie Mavie Duguay was born at the end of April, she couldn t breathe.
I just heard the panic coming from the doctors from outside the operating room, said her father Daniel Duguay.
He later found out Ellie had a severe birth defect called Robin Sequence where an underdeveloped jaw bone causes infants to choke on their tongues.
He called the ordeal heartbreaking and terrifying. ....

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