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Ilaris® receives Health Canada approval as first of its kind treatment for rare, inflammatory disorder, adult-onset Still's disease

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The approval of Ilaris (canakinumab) in the treatment of adult-onset Still s disease (AOSD) brings hope for Canadians living with this rare, debilitating, and sometimes life-threatening inflammatory disorder.
Ilaris, an interleukin-1 beta inhibitor, provides a new mode of treatment for this disease
which previously had limited options.
1,2
DORVAL, QC, April 29, 2021 /CNW Telbec/ - Novartis Pharmaceuticals Canada Inc. is pleased to announce that Health Canada has approved Ilaris
®
(canakinumab) for the treatment of active Still s disease, including adult-onset Still s disease (AOSD)
1. AOSD is a rare form of inflammatory arthritis that can be a complex disease with variable presentation and potentially life-threatening complications ....

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Alberta approves funding to treat rare disease in young children

The Globe and Mail
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The Alberta government has approved funding to treat a rare and often fatal disease in young children with a gene therapy that is considered the world’s most expensive pharmaceutical drug.
Health Minister Tyler Shandro said the province would pay for Zolgensma, which treats Type 1 spinal muscular atrophy, or SMA, on a case-by-case basis while provincial governments negotiate with the drug maker to work out long-term funding. A one-time treatment of Zolgensma costs about US$2.1-million. Alberta is the second province after Ontario to announce such interim funding. ....

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Newly approved treatment could save a young child in Edmonton with a rare disease. It costs $2.8-million per dose

Newly approved treatment could save a young child in Edmonton with a rare disease. It costs $2.8-million per dose
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United States , United Kingdom , British Columbia , Geoffroy Legault Thivierge , Julie Schneiderman , Alex Johnston , Kerry Diotte , Joel Lexchin , David Whitrap , Ryan Fengstad , Tyler Shandro , Heather Mcpherson , Lucy Van Doormaal , Matt Jeneroux , Health Ministers , Drug Administration , Canadian Pharmaceutical Alliance , Institute For Clinical , Canadian Agency For Drugs , Alberta Health , Health Canada , York University , Technologies In Health , Economic Review , Priority Review Status , Common Drug Review ,

Health Canada approves Zolgensma®, the one-time gene therapy for pediatric patients with spinal muscular atrophy (SMA)

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SMA is a rare genetic disease that leads to progressive muscle weakness, paralysis and, when left untreated in its most severe form, permanent ventilation or death for most patients by age 2
2,3
Zolgensma (onasemnogene abeparvovec) is approved for the treatment of pediatric SMA patients with 3 or fewer copies of the SMN2 gene, or infantile-onset SMA
1
Zolgensma is designed to address the genetic root cause of SMA by replacing the missing or defective SMN1 gene to halt disease progression
1
DORVAL, QC, Dec. 16, 2020 /CNW/ - Novartis Pharmaceuticals Canada Inc. is pleased to announce that Health Canada has approved Zolgensma
® (onasemnogene abeparvovec) an adeno-associated virus (AAV) vector-based gene therapy indicated for the treatment of pediatric patients with 5q spinal muscular atrophy (SMA) with bi-allelic mutations in the survival motor neuron 1 ( ....

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