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Alberta approves funding to treat rare disease in young children


The Globe and Mail
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The Alberta government has approved funding to treat a rare and often fatal disease in young children with a gene therapy that is considered the world’s most expensive pharmaceutical drug.
Health Minister Tyler Shandro said the province would pay for Zolgensma, which treats Type 1 spinal muscular atrophy, or SMA, on a case-by-case basis while provincial governments negotiate with the drug maker to work out long-term funding. A one-time treatment of Zolgensma costs about US$2.1-million. Alberta is the second province after Ontario to announce such interim funding. ....

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