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Rare Disease Day: The family who lost three children


BBC News
Published
image copyrightToni Mathieson
image caption I think unless you re affected, you really don t understand or recognise the fact that rare diseases exist, Toni Mathieson said
A mum who lost all three children to a disease which has affected only 110 people in the UK has welcomed plans to light up monuments on Rare Disease Day.
Toni and Stewart Mathieson discovered their five-week-old daughter Lucy had Niemann-Pick Type C (NP-C) in 2003.
Given six months to live, she defied the odds and lived until she was four, but the couple also lost babies Hannah and Samuel to the same disease. ....

United Kingdom , United States , Stewart Mathieson , Hylton Castle , Rare Disease Day , Rare Disease , Niemann Pick United Kingdom , Penshaw Monument , Northern Spire Bridge , Fulwell Mill , Seaburn Lighthouse , ஒன்றுபட்டது கிஂக்டம் , ஒன்றுபட்டது மாநிலங்களில் , ஸ்டீவர்ட் மதீஸொந் , ஹைல்டன் கோட்டை , ரேர் நோய் நாள் , ரேர் நோய் , நிஎமான்ன் தேர்ந்தெடு ஒன்றுபட்டது கிஂக்டம் , வடக்கு ஸ்பைர் பாலம் ,

Washington mum who lost all three of her children to rare condition on her devastating loss


Washington mum who lost all three of her children to rare condition on her devastating loss
Toni Mathieson now supports other families who have children fighting rare diseases
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A mum has opened up about tragically losing three children to a disease so rare only 110 people in the UK have been diagnosed with it. ....

United Kingdom , United States , Lucy Mathieson , Stewart Mathieson , Niemann Pick United Kingdom , Penshaw Monument , Northern Spire Bridge , Rare Disease Day , Rare Disease , Sunday Sun , ஒன்றுபட்டது கிஂக்டம் , ஒன்றுபட்டது மாநிலங்களில் , லூசி மதீஸொந் , ஸ்டீவர்ட் மதீஸொந் , நிஎமான்ன் தேர்ந்தெடு ஒன்றுபட்டது கிஂக்டம் , வடக்கு ஸ்பைர் பாலம் , ரேர் நோய் நாள் , ரேர் நோய் , ஞாயிற்றுக்கிழமை சூரியன் ,

Mum opens up on losing 3 kids to killer disease so rare only 110 people have ever had it


Mum opens up on losing 3 kids to killer disease so rare only 110 people have ever had it
Lucy, Hannah and Samuel Mathieson all tragically died from Niemann-Pick disease type C, a rare disease that just 110 people in the country have been diagnosed with
Updated
Toni and Stewart Mathieson s daughter Lucy died at the age of four after suffering with Niemann-Pick type C
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