Rare Disease Diversity Coalition Formed To End Racial Disparities In Rare Disease Diagnosis, Research And Treatment
NBA Champion Alonzo Mourning, White House COVID Health Equity Task Force Chair Dr. Marcella Nunez-Smith, Rep. G. K. Butterfield and Leading Rare Disease Experts to Join RDDC on February 23rd for Launch of Diversity Coalition
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WASHINGTON, Feb. 23, 2021 /PRNewswire/ Today, the Black Women s Health Imperative (BWHI) hosts the first public meeting of the Rare Disease Diversity Coalition (RDDC). RDDC seeks to address the pressing challenges faced by marginalized populations and identify potential solutions. Led by BWHI and comprised of a diverse group of healthcare organizations, patient advocacy groups, and industry experts, the RDDC is poised to achieve action in the years to come by:
Rare Disease Diversity Coalition Formed To End Racial Disparities in Rare Disease Diagnosis, Research and Treatment
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Rare Disease Diversity Coalition Formed To End Racial Disparities In Rare Disease Diagnosis, Research And Treatment
prnewswire.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from prnewswire.com Daily Mail and Mail on Sunday newspapers.
LANDOVER, Md.
The Epilepsy Foundation today announced the introduction of Brynleigh’s Act (SB 0225 and HB 0370) in the Maryland legislature. This bill ensures that all school personnel will be trained to recognize and respond appropriately to students experiencing seizures. Five states Kentucky, Indiana, Texas, New Jersey, and Illinois have successfully passed Seizure Safe School legislation, while several other states have introduced similar bills in the current session. The bill, named after 6-year-old Brynleigh Shillinger, was originally introduced during the 2020 state legislative session. Hearings were held, but the bill subsequently stalled due to the ongoing pandemic. The bill will be heard by both the House Ways & Means Committee and Senate Education, Health, and Environmental Affairs Committee on January 20.