Live Breaking News & Updates on Neurodegenerative disease grant program

Washington Healthcare Update - December 2023 #3 | McGuireWoods Consulting

This Week in Washington: House passes Lower Costs, More Transparency Act and SUPPORT Act Reauthorization; Senate HELP Committee reports SUPPORT Act Reauthorization and three other bills.

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FDA awards over $38m for advancement of rare disease treatments

FDA awards over $38m for advancement of rare disease treatments
pmlive.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from pmlive.com Daily Mail and Mail on Sunday newspapers.

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FDA Awards 19 Grants and Two Contracts Related to Rare Diseases, including ALS

FDA Awards 19 Grants and Two Contracts Related to Rare Diseases, including ALS
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Sen. Coons, colleagues continue fight against ALS, neurodegenerative diseases | WITN Channel 22 Wilmington, Delaware


May 26, 2021
ACT for ALS Act endorsed by I AM ALS, ALS Association and Muscular Dystrophy Association
WASHINGTON – On Tuesday, U.S. Senators Chris Coons (D-Del.), co-chair of the Senate ALS Caucus, and Lisa Murkowski (R-Alaska), along with U.S. Representatives Mike Quigley (D-Ill.) and Jeff Fortenberry (R-Neb.) reintroduced the bipartisan, bicameral 
Accelerating Access to Critical Therapies for ALS Act (ACT for ALS). This legislation would create the infrastructure necessary to fund early access to promising investigational therapies for patients suffering from fast-progressing rare neurodegenerative and terminal diseases, like ALS.
“Action to support patients with ALS and discover new therapies is incredibly urgent,” 

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