Mila's legacy: The little girl who could change how medicines are made in Britain
Mila Vitarello was just 10 when she died from Batten’s disease. Now, the fight to find a cure for rare genetic disorders arrives in Britain
Source: telegraph.co.uk
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New program launched to accelerate access to personalized therapies for children with rare conditions
Today, Wednesday 22 November, the government announced its support for the Rare Therapies Launch Pad, a new programme that will develop a pathway for children with rare conditions to access individualized therapies.
Source: news-medical.net
Oxford-Harrington Rare Disease Centre named in first global initiative for children with rare diseases
The Oxford-Harrington Rare Disease Centre (OHC) in the Department of Paediatrics has a central role in the delivery of this programme, alongside Genomics England, the Association of the British Pharmaceutical Industry and the Medicines and Healthcare
Source: indiaeducationdiary.in
Parents crack the genetic code of their child's condition to find personalised treatment
When Niamh McDonagh was born with an extremely rare genetic variation, her parents were told little could be done for her. They decided to use their skills as biologists to recreate the specific mutation and understand it better. Their work is based on cutting-edge research helping to develop targeted medicines
Source: irishexaminer.com
Are we entering the era of personalised medicine?
The Human Genome Project was supposed to lead to personalised medicine tailored to our DNA. It's finally happening, but there are still limitations.
Source: bbc.com