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Help raise much needed funds for Evie's Batten Journey

Help raise much needed funds for Evie's Batten Journey
bordertelegraph.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from bordertelegraph.com Daily Mail and Mail on Sunday newspapers.

Evie-mitchell , Border-events-centre , Springwood-park , Kilter-ceilidh-music , Batten-journey , Batten-disease , Silent-auction ,

Help raise much needed funds for Evie's Batten Journey

EVIE’S ball takes place tonight. And you still have time to bid for some wonderful prizes.

Peeblesshire , Scottish-borders , The , United-kingdom , Evie-mitchell , Border-events-centre , Springwood-park , Kilter-ceilidh-music , Batten-journey , Batten-disease , Silent-auction ,

Oxford-Harrington Rare Disease Centre hosts virtual event in honor of the upcoming Rare Disease Day

The Oxford-Harrington Rare Disease Centre, a partnership of the University of Oxford and Harrington Discovery Institute at University Hospitals, is hosting a virtual event on Monday, Feb. 27, 2023, in honor of the upcoming Rare Disease Day, which is celebrated across the globe on February 28 every year.

Julia-vitarello , Jonathans-stamler , Angela-russell , Matthew-wood , Emily-henderson , Diana-wetmore , Jonathan-stamler , William-greenlee , Case-western-reserve-school-of-medicine , Harrington-discovery-institute-at-university-hospitals , University-of-oxford

Evie's Having a Ball at the Borders Events Centre in Kelso

IT’S TIME to get those glad rags dusted down and find those dancing shoes because Evie’s Having A Ball.

United-states , America , Barbara-shiel , Evie-mitchell , Jamie-murray , Border-events-centre , Batten-disease , Saturday-march , Springwood-park , Kilter-ceilidh-music , Batten-journey , Black-tie-ball

'It breaks my heart' - The four-year-old Gateshead boy unlikely to reach his teens after rare disease diagnosis

'It breaks my heart' - The four-year-old Gateshead boy unlikely to reach his teens after rare disease diagnosis
chroniclelive.co.uk - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from chroniclelive.co.uk Daily Mail and Mail on Sunday newspapers.

Longbenton , Newcastle-upon-tyne , United-kingdom , Paris , France-general- , France , Gateshead , Lily-mae-anderson-forbes , Declan-mcmaster , Vicky-king , Tony-anderson-forbes , Anthony-anderson-forbes

Batten Disease Drug Pipeline Market Report 2022: Comprehensive Insights About 10+ Companies and 10+ Pipeline Drugs

/PRNewswire/ -- The "Batten Disease - Pipeline Insight, 2022" drug pipelines has been added to ResearchAndMarkets.com's offering. This "Batten Disease -...

Dublin , Ireland , Ceroid-lipofuscinosis , Laura-wood , E-st-office-hours-call , Office-hours-call , Neurogene-inc , Recursion-pharmaceuticals , Batten-disease , Late-infantile-neuronal-ceroid-lipofuscinosis , Juvenile-infantile-neuronal-ceroid-lipofuscinosis , Juvenile-infantile-neuronal-ceroid

Family of little girl with Batten Disease raise funds for a clinical trail abroad

When little Evelyn O’Byrne met Santa the greatest Christmas gift her family could have wished for is a medical breakthrough which could save her life.

Dublin , Ireland , Co-dublin , Batten-disease , Down-syndrome ,

Scientists Used Gene-Edited Sheep to Develop Drug for Lethal Brain Disorder in Children

Lethal brain disorders in children may finally have a promising treatment. Scientists in the US and the UK may have found a way to treat infantile Batten disease, according to The Guardian.

Germany , Gatersleben , Sachsen-anhalt , United-kingdom , Sean-gallup-getty , April-fowell , Crop-plant-research , Software-simplifies , Leibnitz-institute-of-plant-genetics , Collaborations-pharmaceuticals , Tech-times , Getty-images

Studies on gene-edited sheep could help find cure for Batten disease

Although there is no cure for Batten disease, healthcare providers have been focusing on the treatment of symptoms to make life easier for the carriers of the defect gene. 

United-kingdom , Tom-wishart , Jonathan-cooper , Edinburgh-university-roslin-institute , Collaborations-pharmaceuticals , Washington-university-school-of-medicine , Clinical-investigation , Professor-tom-wishart , Edinburgh-university , Roslin-institute , Professor-jonathan-cooper , Washington-university-school

Batten Disease: What Research Is Being Done?

Much of the NINDS research on Batten disease focuses on developing a better understanding of the disease, gene therapy, ...

Lysosomal-diseases-network , Drug-administration , Batten-disease , The-epoch-times ,